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Ethical considerations in research are a set of principles that guide your research designs and practices. Scientists and researchers must always adhere to a certain code of conduct when collecting data from people.
The goals of human research often include understanding real-life phenomena, studying effective treatments, investigating behaviors, and improving lives in other ways. What you decide to research and how you conduct that research involve key ethical considerations.
These considerations work to :
Voluntary participation means that all research subjects are free to choose to participate without any pressure or coercion.
All participants are able to withdraw from, or leave, the study at any point without feeling an obligation to continue. Your participants don’t need to provide a reason for leaving the study.
It’s important to make it clear to participants that there are no negative consequences or repercussions to their refusal to participate. After all, they’re taking the time to help you in the research process, so you should respect their decisions without trying to change their minds.
Informed consent refers to a situation in which all potential participants receive and understand all the information they need to decide whether they want to participate. This includes information about the study’s benefits, risks, funding, and institutional approval.
Usually, you’ll provide participants with a text for them to read and ask them if they have any questions. If they agree to participate, they can sign or initial the consent form. Note that this may not be sufficient for informed consent when you work with particularly vulnerable groups of people.
If you’re collecting data from people with low literacy, make sure to verbally explain the consent form to them before they agree to participate.
For participants with very limited English proficiency, you should always translate the study materials or work with an interpreter so they have all the information in their first language.
In research with children, you’ll often need informed permission for their participation from their parents or guardians. Although children cannot give informed consent, it’s best to also ask for their assent (agreement) to participate, depending on their age and maturity level.
Anonymity means that you don’t know who the participants are and you can’t link any individual participant to their data.
You can only guarantee anonymity by not collecting any personally identifying information—for example, names, phone numbers, email addresses, IP addresses, physical characteristics, photos, and videos.
In many cases, it may be impossible to truly anonymize data collection. For example, data collected in person or by phone cannot be considered fully anonymous because some personal identifiers (demographic information or phone numbers) are impossible to hide.
You’ll also need to collect some identifying information if you give your participants the option to withdraw their data at a later stage.
Data pseudonymization is an alternative method where you replace identifying information about participants with pseudonymous, or fake, identifiers. The data can still be linked to participants but it’s harder to do so because you separate personal information from the study data.
Confidentiality means that you know who the participants are, but you remove all identifying information from your report.
All participants have a right to privacy, so you should protect their personal data for as long as you store or use it. Even when you can’t collect data anonymously, you should secure confidentiality whenever you can.
As a researcher, you have to consider all possible sources of harm to participants. Harm can come in many different forms.
It’s best to consider every possible source of harm in your study as well as concrete ways to mitigate them. Involve your supervisor to discuss steps for harm reduction.
Make sure to disclose all possible risks of harm to participants before the study to get informed consent. If there is a risk of harm, prepare to provide participants with resources or counseling or medical services if needed.
The way you communicate your research results can sometimes involve ethical issues. Good science communication is honest, reliable, and credible. It’s best to make your results as transparent as possible.
Take steps to actively avoid plagiarism and research misconduct wherever possible.
Research misconduct means making up or falsifying data, manipulating data analyses, or misrepresenting results in research reports. It’s a form of academic fraud.
These actions are committed intentionally and can have serious consequences; research misconduct is not a simple mistake or a point of disagreement about data analyses.
Research misconduct is a serious ethical issue because it can undermine scientific integrity and institutional credibility. It leads to a waste of funding and resources that could have been used for alternative research.
For any information, question or advice, APIDPM can be contacted:
By post :
APIDPM Santé tropicale
135, Chemin de Canto Mai
83190 Ollioules- France
By phone: +33 4 94 63 24 99
By e-mail : through the dedicated form on the APIDPM websites or directly at the following address apidpm4@gmail.com.
Agence Panafricaine Interactive de Développement et de Promotion du Médicament (APIDPM) is a limited liability company with a capital of 5,000 euros, registered in the Toulon Trade and Companies Register under number 493 663 074 00026, with its registered office at 135, Chemin de Canto Mai - 83190 Ollioules - France.
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